News

NEW: Reports from The National Resource Center's 2015-2016 State Partners

Our Five Partners - Delaware, Indiana, North Carolina, Maine, and Wisconsin have prepared summary reports for their participation in the 2015-2016 Grant Year

Vermont to change culture of disabilities

Change the Culture, Change the World: Increasing Independence by Creating a Culture of Coordinated Support

First-Ever National Resource Center for Self-Advocacy to Empower People with Intellectual and Developmental Disabilities

ACL is excited to announce the first-ever grant to establish a National Resource Center for Self-Advocacy (NRCSA) to empower people with intellectual and developmental disabilities (IDD) for enhancing their voice on issues important to their well-being and daily life. Self Advocates Becoming Empowered (SABE) will lead the effort in partnership with several organizations.

Supported Decision-Making Law Approved by the Knesset

On 29.3.16 the Knesset voted in favour of the Amendment to the Legal Capacity and Guardianship Law. This amendment constitutes a substantial reform to the law and includes a number of dramatic changes

National Resource Center for Supported Decision-Making is accepting applications for the second year of our State Grant Program

We will be awarding grants for state-based projects that adopt an innovative approach to increase knowledge of and access to Supported Decision-Making by older adults and people with intellectual and developmental disabilities across the life course.

Dr. Blanck presents keynote at Future Directions in Supported Decision-Making Research Symposium in Melbourne, Australia

Learn about the experiences of supported decision-making research practitioners; hear about their projects, including the aims, methodology, challenges and, of course, their successes.

Supported Decision-­Making: Giving Mental Health a Voice

e Saks Institute for Mental Health, Law, Policy & Ethics was selected as a Battery Powered Awardee - Supported Decision-­Making: Giving Mental Health a Voice

Tuesdays with Liz: Disability Policy for All Interview Tina Campanella Interview

Liz interviews Tina Campanella, Chief Executive Officer of the Quality Trust for Individuals with Disabilities, on supported decision making.

Autonomy, Decision-Making Supports, and Guardianship

Joint Position Statement of AAIDD and The Arc

Final Results from our Supported Decision-Making Survey

The National Resource Center for Supported Decision-making (NRC-SDM) hosted an online survey to collect stories of SDM successes and challenges from individuals, family members, advocates, and providers across the country.

“What Guardianship Means to Me”

Members of Disability Rights Maine's DD Advisory Council share their thoughts on guardianship.

Developmental Disabilities Council of Colorado host Jonathan Martinis to talk about supported decision-making (SDM)

The Developmental Disabilities Council hosted Jonathan Martinis regarding supported decision-making (SDM), which is a way of thinking/acting that can avoid guardianship. It is a great topic that dovetails well with the new Settings Rules out of the Centers for Medicaid and Medicare Services.

Supported Decision Making/Alternatives to Guardianship

DRTx Legal Director interviewed on Time Warner News Capital Tonight program: Many people think that guardianship is the best way to help adults with intellectual or developmental disabilities make important decisions. The truth is, guardianship is often not necessary. Learn more about the new guardianship reform laws passed in Texas that will give people with disabilities more independence.

Burton Blatt Institute receives $2.5 Million from National Institute on Disability, Independent Living, and Rehabilitation Research for Increasing Supported Decision Making in Community Living

The Burton Blatt Institute at Syracuse University (BBI) has received $2.5 Million grant from the U.S. Department of Health & Human Services, Administration on Community Living, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) for a new five-year project on “Understanding and Increasing Supported Decision-Making’s Positive Impact on Community Living and Participation Outcomes.” The funding (grant #90DP0076-01-00) is the only award of its kind in the country.

National Resource Center’s Annual Report 2015

Quality Trust for Individuals with Disabilities (“Quality Trust”) is pleased and proud to submit this Annual Report for the period from September 2014-August 2015.

Preliminary Results from our Supported Decision-Making Survey

People are telling us how they are supported and how it makes them feel, Supporters are telling us how less restrictive options to guardianship were identified, considered, and decided, We are hearing about the impact of supported decision-making relative to a more restricted role in decision-making through guardianship, and Respondents are telling us what lessons can be learned.

The National Resource Center on Supported Decision-Making is conducting a short survey

The National Resource Center on Supported Decision-Making is conducting a short survey about: Ways that people get help from family, friend, and other people to make decisions. How parents, friends, service providers, or others help individuals with intellectual and developmental disabilities make everyday decisions, informally or formally.

Jonathan Martinis presents at Florida Guardian ad Litem Program Disabilities Training Conference Supported Decision-Making: From Justice for Jenny to Justice for All!

This year over 450 attorneys, judges and child welfare professionals attended the second Florida Guardian ad Litem Program Disabilities Training Conference. The keynote speakers were inspiring thought provoking and gave us all tools to use in helping the children we work with every day. The workshops were wide ranging with presenters sharing their expertise in areas such as guardianships, psychotropic medications, master trusts and educational advocacy. Below are the videos of the from the workshops and keynote speakers. If you are an attorney in Florida and would like to receive CLE credit you will need to watch the video and report the course number and information to the Florida Bar at www.FloridaBar.org. There are 45 credit hours available below. The course number is valid for 18 months or until November 20, 2016.

Just Being Me: My Right to be in the World (Community Living) and my Right to make my own Decisions in the World (Legal Capacity).

Dr. Blanck to open conference on global context for the reform process in Israel.
Purpose of the Conference: Most countries in the world are making progress in closing down institutions and enabling people with disabilities to live and flourish in the community. This entails choice for the person, the emergence of new models of service provision, as well as self-directed and supported devolved budgets and decision-making. At the same time, many countries are taking the next logical step of finding ways to enable people make their own way in the world and to make their own decisions – big or small – in order to take control over their own lives.

Supported Decision-Making: Respecting Ability Workshop AIDD Conference

Jonathan Martinis reinforces the fact that, “we learn from the decisions we make, and the mistakes we learn from, only help to further direct us within our own lives. We all make mistakes and I don’t think any one of us in this room is perfect.”

Webinar: eQuality: The Struggle for Web Accessibility by Persons with Cognitive Disabilities

Thursday - October 16, 2014 at 2:00 - 3:00 (Eastern Time), BBI Chairman, Dr. Peter Blanck, will discuss and answer questions about his new book entitled “eQuality: The Struggle for Web Accessibility by Persons with Cognitive Disabilities,” published by Cambridge University Press in 2014.

Workshop on the new National Resource Center for Supported Decision-Making

Tina Campanella, Jonathan Martinis, Jenny Hatch, and Peter Blanck invited to present a workshop on the new National Resource Center for Supported Decision-Making funded by the Administration on Community Living (ACL) at the 2015 Jacobus tenBroek Disability Law Symposium: The ADA at Fifty: The Future of Disability Law and the Right to Live in the World.

Supported Decision-Making Three Part Webinar Series

In the summer of 2013, a young woman named Jenny Hatch won a landmark legal battle protecting her right to make her own life decisions using supported decision-making instead of being subjected to guardianship. Nationwide, people with intellectual, developmental and other disabilities continue to be placed under guardianship, losing their rights to make basic, fundamental decisions like where to live, what to do and who to see. Supported decision-making (SDM) is an effective, less restrictive alternative to guardianship that uses trusted friends, family members and advocates to give people with disabilities the help they need and want to understand the situations they face and the choices they must make, so they can make their own decisions. SDM shows great promise for increasing self-determination and improving quality of life outcomes.

Hear Jenny Hatch and Jonathan Martinis talk about "Justice for Jenny" 2014 Jacobus tenBroek Disability Law Symposium

2014 theme keynote speakers Jenny Hatch and Jonathan Martinis will talk about the landmark case in which Ms. Hatch won the right to make her own decisions through supported decision-making rather than being forced into a guardianship that she did not want and that would make all decisions for her.

Supported Decision-Making: An Agenda for Action

Supported Decision Making Report from 2013 Symposium Available for Download
February 19, 2014
Quality Trust for Individuals with Disabilities, the Council on Quality and Leadership and the Burton Blatt Institute sponsored a symposium on Best Practices in Supported Decision-Making in October 2013. A report from their work at the symposium is now available for download.

Invitational Symposium on Best Practices in Decision Making Support

Quality Trust for Individuals with Disabilities, the Council on Quality and Leadership and the Burton Blatt Institute are sponsoring a one-day invitational symposium on Best Practices in Supported Decision-Making.