Presenter Materials are available for download for the National Resource Center for Supported Decision-Making Symposium, “Taking Stock and Forging Ahead.” The two-day symposium is on June 10 and 11, 2019, at American University Washington College of Law (4300 Nebraska Avenue, NW, Washington, DC 20016).
Download Agenda
Day 1 – 10:15-11:45 Concurrent Breakout Sessions
- The Alaska Experience: How System-Wide Collaboration and Focused Leadership Brought Effective Supported Decision- Making Agreements to the Last Frontier and Where Our Momentum Leads Next
Anne Applegate, Governor’s Council on Disability and Special Education - Learning from Supported Decision- Making Pilot Projects in Georgia and Massachusetts
Michael Kendrick, Center for Public Representation; Dana Lloyd, Georgia Advocacy Office; John McCarty, Self Advocacy Resource and Technical Assistance Center Fellow
Some Lessons From Seven Supported Decision Making Pilot Projects
Supported Decision Making Pilot in Georgia - The Pivot from Policy Change to Information Dissemination: Changing the Culture One Training at a Time in Tennessee
Lauren Pearcy, TN Council on Developmental Disabilities; Carrie Hobbs Guiden, The Arc of TN; Susan Mee, Disability Rights TN - Supported Decision-Making in Maine
Nell Brimmer, Disability Rights Maine; Margaret Cardoza, Self-Advocate
Supported Decision-Making A User’s Guide for People with Disabilities and Their Supporters
Day 1 – 1:30-3:00 Concurrent Breakout Sessions
- More on NCD Reports: Beyond Guardianship and Turning Rights into Reality
Phoebe Ball, National Council on Disability; Morgan Whitlatch, Quality Trust; Nicole Jorwic, The Arc of the United States; Kelly Israel, Autistic Self Advocacy Network - 100 Miles an Hour: Getting from Project to Law in Three Years in Indiana
Melissa Keyes, Indiana Disability Rights; Erica Costello, Indiana Supreme Court Adult Guardianship Office - Transforming Guardianship: How One Guardianship Agency is Implementing Supported Decision-Making in Ohio
Kristen Henry, Advocacy and Protective Services, Inc. - My Choice Kentucky: Grassroots Efforts to Expand Supported Decision-Making
Laura Butler, Human Development Institute University of Kentucky
Day 1 – 3:15-4:45 Concurrent Breakout Sessions
- Exploring Opportunities and Barriers to Supported Decision-Making in the District of Columbia
Molly Whalen, DC Association for Special Education; Thomas Mangrum, Project ACTION!; Liz Seaton, DC Department on Disability Services; Joan Christopher, Georgetown University Center for Child and Human Development - Learning the Language of Dementia to Enhance Supported Decision- Making
Kim Grier, Grier Dementia Training - Supported Decision- Making in Nevada: Going from No Support to Full Support
The Honorable Frances Doherty, Second Judicial District Court, Nevada - Everyone Communicates: A Toolkit from the Autistic Self- Advocacy Network
Samantha Crane, ASAN
Day 2 – 9:00-9:45 Opening Plenary Session
- Legal Capacity for All: Including Older Persons in the Shift from Adult Guardianship to Supported Decision-Making
Professor Rebekah Diller, Benjamin N. Cardozo School of Law, Yeshiva University,
Day 2 – 10:00-11:30 Concurrent Breakout Sessions
- Uniform Guardianship, Conservatorship, and Other Protective Arrangements Act (UGCOPAA), the “PRACTICAL Tool,” and “Finding the Right Fit” Curriculum
Erica Wood and Dari Pogach, ABA Commission on Law and Aging
Finding the Right Fit: Decision-Making Supports and Guardianship – Handout - The Role of Family Organizations in Advancing Supported Decision-Making: Parent Centers and Family to Family Health Information Centers Leading the Way!
Dawn Monaco, REACH for Transition at the SPAN Parent Advocacy Network; Bev Baker, Family Voices; and Carrie Woodcock and Dylan Campbell, Maine Parent Federation - Supported Decision- Making for People with Psychiatric Disabilities
Christopher Schneiders and Sonja Castaneda- Cudney, Saks Institute for Mental Health Law, Policy, and Ethics
Saks Institute for Mental Health, Law, Policy & Ethics Website
Saks Institute pilot study – Supported Decision-Making: Giving Mental Health a Voice - A Multi-Faceted Journey to Supported Decision-Making in Missouri
Jane St. John, UMKC Institute for Human Development
Day 2 – 11:45-12:45 Lunch and Plenary Session
- Supported Decision-Making, Human Rights, and Legal Capacity for People with I/DD
The Honorable Kristin Booth Glen, University Professor and Dean Emerita at CUNY School of Law, Project Director of Supported Decision-Making New York (SDMNY)
Day 2 – 1:00-2:30 Concurrent Breakout Sessions
- SDMNY: Lessons Learned 3 Years into a Statewide Supported Decision- Making Pilot Program
Matthew “Hezzy” Smith, Joan Cornachio, Ketrina Hazell, and Nelle Richardson from SDMNY - Supported Decision- Making in Health Care
Panel: David Hutt, National Disability Rights Network; Thelma Green, Project ACTION! Facilitator: Morgan Whitlatch, Quality Trust
National Resource Center for Supported Decision-Making Health Care Resources and National Disability Rights Network Supported Decision Making and Health Care Resources - ABLE Accounts and Supported Decision- Making
Jonathan Martinis, Burton Blatt Institute; Jason Harris, Jason’s Connections - The Social Model of Disability in Supported Decision-Making Efforts: Assessing the Environment, Not the Individual, in South Carolina
Jerri Davison, Able South Carolina
Skill Building Opportunities: The Key to Unlocking Supported Decision Making Access
Stop, Look, and Listen: Planning for Independence and Adult Decision-Making Support Handout
- The Alaska Experience: How System-Wide Collaboration and Focused Leadership Brought Effective Supported Decision- Making Agreements to the Last Frontier and Where Our Momentum Leads Next